My hEDS Diagnosis Story
I was a bendy kid. I could do a backbend and walk my hands all the way back to my feet until my body made an O. I mostly sat with my legs in a W on the floor. So comfy. I would also sit with my legs tucked behind my head like a pretzel. I slept in a kind of child’s pose every night, but legs in a W and hands curled inward tucked under my chin. Just how my body wanted to be. I thought I was just built different. Cool, even. My body could do things other kids’ bodies couldn’t, and nobody told me otherwise, so I filed it under fun party tricks and moved on. Nobody mentioned hypermobility. Nobody mentioned Ehlers-Danlos Syndrome….
